Development of a core outcome set for congenital pulmonary airway malformations: study protocol of an international Delphi survey
Development of a core outcome set for congenital pulmonary airway malformations
Study protocol of an international Delphi survey
Paper
Hermelijn S, Kersten C, Mullassery D On behalf of the CONNECT study consortium COS development group, On behalf of the CONNECT study consortium COS development group, et al Development of a core outcome set for congenital pulmonary airway malformations: study protocol of an international Delphi survey BMJ Open 2021;11:e044544. doi: 10.1136/bmjopen-2020-044544
International Delphy Survey
Ongenital pulmonary
airway malformations
This study will include a critical appraisal of the current literature followed by a three-stage Delphi process with two stakeholder groups
Source/Company
Martin Fontanari and Anastasia Traskevich
Authors
April 12, 2021
Published Online
Abstract
A worldwide lack of consensus exists on the optimal management of asymptomatic congenital pulmonary airway malformation (CPAM) even though the incidence is increasing. Either a surgical resection is performed or a wait-and-see policy is employed, depending on the treating physician. Management is largely based on expert opinion and scientific evidence is scarce. Wide variations in outcome measures are seen between studies making comparison difficult thus highlighting the lack of universal consensus in outcome measures as well. We aim to define a core outcome set which will include the most important core outcome parameters for paediatric patients with an asymptomatic CPAM.
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